Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Thursday, September 18, 2008
It's a Cold!
Kaitlyn has increased secretions today, needing very frequent suctioning. So far there is only the increase in secretions, and mostly from the nose. Hopefully we are dealing with a head cold. Alexander started with an occasionally runny nose only yesterday. Owen seems just fine. So far nobody is coughing or really acting very sick at all. Alexander is still a little wet at the nose , but no new symptoms. We will have to watch Kaitlyn pretty close for the next few days as we see where this virus will take us.
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