Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Thursday, May 8, 2008
Something's Up
Kaitlyn started today with increased secretions, with a bit of color. We have called her pediatrician and will start a course of antibiotics. Kaitlyn's sats are unaffected at this point, and she is requiring no extra Bi-pap as of yet. She is also still sounding very clear. But the increase in secretions with color, and no change in diet, sounds most like a cold at this point. Better to be safe than sorry. Hopefully we have caught it soon enough and it won't amount to much.
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