Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Monday, May 12, 2008
No Change
Kaitlyn has been on an antibiotic for the whole weekend and there is no improvement in secretions, if anything they are even more green. Her secretions are still nice and thin. So far we have not had any trouble with feeds. This cold is definitely different than any she has had in the past. Usually her secretions dry up after only a few days. We have an appointment tomorrow for a Body Jacket so that Kaitlyn will be properly supported when she is sitting up. I think that we are going to have to cancel it, but we will see what tomorrow brings. Kaitlyn has already missed one appointment for this brace.
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