Tuesday, June 23, 2009

Under the Weather

Kaitlyn has been under the weather the past few days. I haven't had much time to post about it as Tim and I have been busy doing therapies around the clock. She started with increased secretions and a bit of a temp. last Thursday evening. By Friday morning she was pretty goupy and had a temperature. Secretions were pretty bright green (reminiscent of our pseudomonas days!). Anyway with the color of the secretions, how fast this all came on, and the fact that nobody else was sick made up our minds to start her on an antibiotic. We did send in a sputum sample for culture, but haven't heard back yet. Hopefully I'll remember to call and get our ped. to find out tomorrow!! We started her on Cipro. which is a pretty broad spectrum (pseudo-killing) antibiotic. Hopefully it'll do the trick!
She still has wet lungs even today! This is just sort of hanging on! I was hoping that she would be all better by Wednesday as we have a neurology clinic. But even if she makes a remarkable recovery overnight, there will still be residual increased secretions on Wednesday. I guess she will have to do her first clinic bi-pap dependant!!! What a long day that will be for her. Thank goodness we are fully mobile for powering all of her equipment!

My boys are coming home tomorrow. They've been having an extended weekend with the grandparents so Tim and I could focus on Kaitlyn. Perhaps once they're home Kaitlyn will get better faster....she really dislikes missing all the fun (can't "run" through the house chasing boys while attached to a machine and moving around too much makes you choke!!!).

I cannot believe how big my girl is getting. I remember the days when she would sleep at the bottom of our bed (when sick) and there was still enough room for Mommy and Daddy. Not anymore!!! Daddy gets to sleep on the couch now!! SHHHH...She's sleeping!

This one is of Kaitlyn holding her magic wand that Lexx and Ayva sent her from Alberta. She LOVES it, and particularly loves when the air from the bi-pap mask blows the wand making the little sparkles flutter! She is also making good use of her new Z-flo positioners that Karah sent me from Kentucky!!! Thanks Karah they are keeping my feet in a better position while I wait for my new AFO's!!
Having a taste of Daddy's salad. She fussed when Daddy tried to give her anything but greens!! She licks and licks and licks....saying, mmmmmmmmm!
Alex never has a nap anymore, except on rare occasions when he wants to be held and then "conks" out. Look how big he is getting!


Ana Alesia said...

Sweet Kaitlyn, please use your magic wand someday for you and for all brave fighters like yourself!

Love AAA

Devon said...

HI! Hoping that Kaitlyn is feeling ok...haven't heard from you in a while...