Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Monday, August 11, 2008
Powerchair
Kaitlyn has had her first try with a power chair today. She tried a quantum base with a mini joystick. She totally got that the joystick moved the chair. The seating people were surprised that she got the fact that the joystick would move the chair. They thought that a successful day would end with her sitting in the chair and not fussing over them trying to adjust different things. She couldn't get a good grasp on the joystick as they had it attached to a gooseneck and the position wasn't quite right. But still a very good first try. We will try again in two weeks to allow the seating specialists a chance to make some changes.
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