Kaitlyn had to go for Bone Density Scans today. We had concerns about Kaitlyn's calcium and dosage when we saw her neurologist back at the beginning of May and we are just now having scans done. They will be a good baseline look at before and after supplementation and we will learn if she has any issues with bone density currently. I'd be surprised if her bones weren't at least a little less dense than they should be given that she has no weight bearing at all and has never been given much more than the recommended calcium intake for a normal child her age. We have asked about standers several times in the past, but it always seems like she is needing any available funding for something more important at the same time.
Kaitlyn also had bloodwork done today. Her veins are getting easier to find it would seem. The last two times we have needed blood they got it after only two pokes both times! This is unheard of for Kaitlyn. We usually have had to do femoral pokes to get blood. It is nice to know that either she is getting easier to poke with age or that perhaps she has a little more muscle now. She is definitely much stronger now than she was a few months ago.
Kaitlyn's thrush also appears to have cleared up. It wasn't that bad to begin with, thank goodness. We will treat for a few more days with the Nystatin just to be sure. Besides Kaitlyn loves it. We apply it with a Q-tip and when she sees us coming with a syringe and a Q-tip she starts um-um and licking her lips. She seems to really love the taste(banana). Although Kaitlyn will eat anything if you give her the opportunity. She especially loves to steal your fork at supper and pretend to eat with it. She at one point would cry through every meal until we placed her in the middle of the Kitchen table to join us for supper. Now that we have her Easys stroller she can sit up to the table with us. She is still our little taste tester, sampling everything before we can eat it. We spend the whole meal eating and suctioning, it's turned into quite the process.
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