Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Monday, September 8, 2008
Nursery School
Kaitlyn's big brother Owen started Nursery School today. He absolutely loves it! He seems to thrive on all the attention and activity. We are now on the watch for viruses. We make Owen change his clothes as soon as he gets home. Owen has been told to wash his hands at school, and we have told his teachers about his sister. I know that we can only do so much to prevent illness, but we will do our best.
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