Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Sunday, September 14, 2008
Possible Cold!
Tim and the boys travelled home to the grandparents this weekend. (Two hours away, so Kaitlyn and I stayed home). When they got home Owen's voice was quite hoarse. He sounds like he might be coming down with something. It hasn't even been a full week since Owen started school. Perhaps it is just allergies we will see what he is like in the morning.
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