Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Monday, September 15, 2008
Cold...?
I still am not sure whether this is a cold or not. Owen still sounded a little hoarse this morning, but better than yesterday. He has no other symptoms. He ended up going to school. Alexander started sneezing this afternoon and once when he got upset about something he needed his nose wiped and this is unusual for him. I am still not sure because if it is a cold the symptoms are really mild. If we weren't always on the watch we might think nothing was wrong. We are keeping the boys away from Kaitlyn as much as possible. This is hard when they love her sooo much, are extremely affectionate, and I am only one person.
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