Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Monday, February 16, 2009
This is one of Kaitlyn's favorite things to do!! She loves it...listen close you will hear her laugh!! I think she would do this all day long if she could convince someone to keep it up!!