Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Saturday, November 15, 2008
A Little Better
Kaitlyn is doing a little better. She still has some crackles and we are getting a bit up. Secretions are a bit on the greeny side. Her suction bucket looks like it's growing moss! (Hows that for graphic?) My guess would be a pseudomonas flare up. We put her on antibiotics again, so that should help keep the pseudomonas under control. Her fever did come back yesterday, but has been managed with just Tylenol. I haven't checked it yet this morning, she is sleeping so sound I haven't wanted to wake her. I'm still not sure if we are dealing with aspirant or a chest cold. None of the rest of us have developed anything in our chests, so I'm not sure what to think. My throat is a little more sore today but it's probably because I've been awake for 26+ hours now and am really tired. Tim is coming soon to relieve me for morning physio, so I think I'll go get some much needed rest.
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1 comment:
Oh I am so sorry to hear she is so sick! Poor thing. I will definately keep her in my thoughts and prayers. Hugs! Mary
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