Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Friday, October 10, 2008
Couch Play
The kids were playing on the couch tonight. I just thought that I would share the pics. Kaitlyn loves sitting up on the couch like a big girl. Owen was trying to play cars with her, but as you can see she was more interested in her precious piece of plastic! She has taken a shine lately to plastic from O2 probes, syringe wrappers, and such. She can't get it into her mouth, so we let her crinkle it in her fingers. I guess she's in love with the sounds it makes! Take her plastic away and she crys, so she wins! She even takes it to bed with her!
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