She was having an absolute BLAST tonight chasing brothers with Daddy. Tim carried her and hollered at the boys and everybody was running up and down the halls. Lots of noise, bouncing and smiles. Tim noticed how long Kaitlyn's hair is getting. I can't believe how fast the children grow! Our oldest boy, Owen, will be 4 years old November 14th and the Twins will be 2 years old November 30th.
Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Monday, October 6, 2008
Crazy Hair
Kaitlyn has been doing pretty well the last few days. We have had short spells of sitting up...yay! I was reading the other day that symptoms of hayfever can happen while using Enoxaparin. Kaitlyn has been receiving enoxaparin injections for the past month for blood clots in the groin of both legs. I hope that she can adjust to the increase in secretions.
She was having an absolute BLAST tonight chasing brothers with Daddy. Tim carried her and hollered at the boys and everybody was running up and down the halls. Lots of noise, bouncing and smiles. Tim noticed how long Kaitlyn's hair is getting. I can't believe how fast the children grow! Our oldest boy, Owen, will be 4 years old November 14th and the Twins will be 2 years old November 30th.
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She was having an absolute BLAST tonight chasing brothers with Daddy. Tim carried her and hollered at the boys and everybody was running up and down the halls. Lots of noise, bouncing and smiles. Tim noticed how long Kaitlyn's hair is getting. I can't believe how fast the children grow! Our oldest boy, Owen, will be 4 years old November 14th and the Twins will be 2 years old November 30th.
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