Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway.
Wednesday, October 22, 2008
Sigh!
Sigh! Kaitlyn started this afternoon with thicker increased secretions. She was awake quite a bit through the night last night. I didn't think much of it last night, as it is fairly common for her to have a bad night now and then. Now I'm wondering if she wasn't feeling a little off. Alexander went to bed quite snotty, and Owen was just a little warm and whiny. Well, we'll see what the morning brings. Kaitlyn's sats and heart rate were excellent going to bed, so perhaps it won't develop into much.
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1 comment:
Oh no! Hope Kaitlyn doesn't catch what her brothers have. Big hugs!
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